Aiden's Journey

One Little Boy's Battle with Dravet Syndrome


14 Days

Posted by Nicole on July 18, 2011 at 10:31 PM

Happy 14th Day! Aiden has not had a major seizure since the 4th of July, which makes it officially 2 entire weeks: A record since… Let me check my spreadsheet… April 2010, 72 tonic clonic seizures ago. Woohoo!

How did we celebrate? By heading to the pool, of course, on a 97 degree, sunshiny day. We can officially add “taking my 3 kids AND a friend for the 9 year old to a body of water for an hour and a half to swim” to the list of luxuries stiripentol, the med we import from France, has afforded us in the past year and a half. I would never have believed it possible, but Aiden continues to defy our expectations.

I don’t have any confidence this streak will continue, but Thank you, God, for 14 relatively clear-headed, healing days. It must do wonders for his little brain.

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Reply Grandma Mar
2:20 PM on July 19, 2011 
Amen! Truly a reason to celebrate. Let's hope the record continues.
Reply Paige Figi
9:50 PM on July 21, 2011 
Niiiiiice! That is pretty exciting. And may this pattern stick for a long time to come.