Aiden's Journey

One Little Boy's Battle with Dravet Syndrome

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Mom! They're...

Posted by Nicole on June 14, 2011 at 4:13 PM

I'm sitting here in front of a Caribou 900 miles from home using their internet connection to do my work for a few minutes (online teaching is absolutely a godsend when you have a child like Aiden!), and now that I've finished work I can brag about my flexible kids very quickly.


14 hours in the car (complete with old-school navigation by maps through various farmfields and dirt roads no thanks to a GPS who thought a 1.5 hour U-turn should do the trick) and no fighting, no whining, no tears, and no seizures. Praise!


New beds every 2 nights (when all of your family is here you have to share the disaster love evenly). 


We were in Old Navy, starving, a few minutes ago, killing time while the eldest is at a playdate and the 7 year old turns to me at the checkout and says, "Mom! Can we have those?" pointing to the usual jar of snacks/candy on the register. I start my auto-reply, "Honey, Aiden can't..." and am interrupted by the 7 year old finishing his sentence, "They're gluten free!! It says so right here!"


Love, love, love that kid. All of them - rock stars, again.


p.s. Individually packaged Fruity Pebbles Marshmallow Krispies are, indeed, gluten free. And ridiculously tasty on an empty stomach.

Categories: April-June 2011

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1 Comment

Reply Rebecca Jensen
6:23 PM on June 16, 2011 
We found these at the store today too and were thrilled! Thanks for the idea!